tag:blogger.com,1999:blog-2044339197163784788.post8855762016763899042..comments2023-10-11T21:57:23.614+01:00Comments on What a Pain in the Bum !: Next Steps on the long winding road.........Carolehttp://www.blogger.com/profile/11470170206537639792noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-2044339197163784788.post-84183567565513833502011-11-18T09:27:01.309+00:002011-11-18T09:27:01.309+00:00Hi Carol,
Always thinking about you too hun...hop...Hi Carol,<br /><br />Always thinking about you too hun...hoping you get some decent answers from your scan. xx<br /><br />Hello Nancy, <br />Nice to hear from you as always :)<br />Yes you're right, no compression is definitely a good thing and my treatment plan is keeping me happy, for now.<br />Almost done with the Radiotherapy now so then it's just a case of wait for the side effects to kick in, and hoping for the best outcome - less/no pain<br />xxXxxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-75197283789732071672011-11-17T22:45:58.766+00:002011-11-17T22:45:58.766+00:00Carole, Good Lord, you have been dealing with a lo...Carole, Good Lord, you have been dealing with a lot! I am so sorry about the mets, but no spinal compression is a good thing. It does sound like you have a plan you are comfortable with and that counts for an awful lot. I will be thinking of you as you continue on this journey you never wanted to be on. I hope the pain is under control soon. Keep on keepin' on, Carole. My best to you.nancyspointhttp://www.nancyspoint.comnoreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-73389068472040838762011-11-17T06:12:00.390+00:002011-11-17T06:12:00.390+00:00Hi Carole,
(Haven't been on for a bit)!
Great ...Hi Carole,<br />(Haven't been on for a bit)!<br />Great to hear that cyberknife is not totally off the table. And fantastic news that the radiotherapy will not leave burns!<br />Hopefully the tweaking of the pain meds will help.<br />Always thinking of you.........sending love, light and positive vibes!<br />Hugs<br />CarolCarolhttps://www.blogger.com/profile/11886631425972262152noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-9495493734068821182011-11-14T08:43:11.648+00:002011-11-14T08:43:11.648+00:00@ Lou...LOL - keeping my fingers and toes crossed ...@ Lou...LOL - keeping my fingers and toes crossed that he does ring :)<br />xxXxxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-68644999136427882522011-11-14T08:15:23.527+00:002011-11-14T08:15:23.527+00:00Gotta sort my landline out hun, just in case my de...Gotta sort my landline out hun, just in case my dentist needs to get hold of me! LOL xxxxxCandidehttps://www.blogger.com/profile/06188362435668971626noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-23750623595423276872011-11-13T23:44:28.033+00:002011-11-13T23:44:28.033+00:00Hey T :)
I'm not stressed about the cost thin...Hey T :)<br /><br />I'm not stressed about the cost thing and the cyberknife, simply because they said if I do turn out to need it they'll make sure I get it. <br /><br />I see their reasoning that it's better to start now and try to sort out this pain - rather than wait up to 6 weeks, then have to start normal Radiotherapy anyway. <br />I think as you said, the Avastin issue is different as there really isn't an alternative that is tons cheaper.<br />Re Avastin - I told you recently about the young 29 yr old who needs it, and has been denied as she lives in Wales :( Sad.....<br /><br />As for looking forward to getting rid of the pain?....Noooo, I've got used to it now, I'd miss it LOL ...roll on pain free time <br />Hugs xXxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-29614481873308234242011-11-13T23:37:38.171+00:002011-11-13T23:37:38.171+00:00Sally, welcome to my world :)
Thank you for takin...Sally, welcome to my world :)<br /><br />Thank you for taking the time to leave such a nice comment. <br />I'm in total agreement with you that they don't always get it right (Doctors) - I'm feeling well apart from this pain, so if I can sort that out I plan on proving them wrong, like your sister, for a long time :)<br />Much luv xxXxxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-18482679848886001372011-11-13T23:32:38.267+00:002011-11-13T23:32:38.267+00:00Hi Lou,
Thank you for sharing that - am optimistic...Hi Lou,<br />Thank you for sharing that - am optimistic that this will also apply to me....:)<br />Love ya loads too and hoping to be able to get together once Sarah's here <br />Hugs and much luv xxXxx<br />PS...Sort your landline out eh! :) xxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-43812166643675281562011-11-13T23:30:15.071+00:002011-11-13T23:30:15.071+00:00Hi Chezzy :)
I'm *determined* to sail through ...Hi Chezzy :)<br />I'm *determined* to sail through the Radiotherapy this time & believe I had to get my mind into the right frame to do this easily.<br /><br />Last time I dreaded it, was already in a confused state due to the diagnosis - this time I'm like 'Ok, fine - so what are we doing then'...No shock, no surprise, no confusion just 'What can we do that provides quality of life'<br /><br />I'm not sure that I'm particularly courageous - maybe delusional is more appropriate at times :) I sit here and find myself thinking that they're wrong and I'll prove it - by surviving (at least longer than they think I can/will).... :)Carolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-37641342937846220252011-11-13T23:21:51.827+00:002011-11-13T23:21:51.827+00:00Hi Mimi,
Thank you for the good wishes...I'm n...Hi Mimi,<br />Thank you for the good wishes...I'm not particularly strong, I just find a way to deal with what life chucks in my direction. <br />So, it's either cope or give up - I'm just not a quitter (and I like to be awkward :-))....) xx<br /><br />Katherine,<br />You know you're always in my thoughts too. Lovely to catch up properly the other day xx <br /><br />Fiona,<br />Hugs back and apologies for not catching up with you via your blog recently. I will do that this week xxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-58940972916857660022011-11-13T23:16:57.698+00:002011-11-13T23:16:57.698+00:00Hiya Shents :)
After waiting around and being left...Hiya Shents :)<br />After waiting around and being left to my own devices for so long, it really HAS been a complete whirlwind these last two weeks. <br />I'm totally happy with my current care plan...<br /><br />If I'm pain free within the next 3 weeks I'll definitely be raising that glass with you <br />Much luv xxCarolehttps://www.blogger.com/profile/11470170206537639792noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-73201192561193602502011-11-13T22:13:04.801+00:002011-11-13T22:13:04.801+00:00Carol i stumbled on your blog by accident ages ago...Carol i stumbled on your blog by accident ages ago and have been trying to read it all (I still haven`t managed that yet) But i saw tonight how difficult things are for you at the moment. I know words are not enough but I just wanted to say that I really do wish you well with your treatment and i wanted to send my love to you and your family. I always think its worth remembering that as brilliant as some of these Drs are they do not know it all, and my sister proved them wrong for a long, long time.<br />Take care and look after yourself Carol<br />love sally xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-31949645867339235672011-11-13T20:36:23.108+00:002011-11-13T20:36:23.108+00:00Will be thinking of you all next week (not that I ...Will be thinking of you all next week (not that I don't think of you otherwise!). I know someone who has kidney cancer with spinal mets. She's had radiotherapy recently and it has made a huge difference to the pain she was experiencing. So, fingers crossed eh? <br /><br />Love ya!<br /><br />xxxxxxCandidehttps://www.blogger.com/profile/06188362435668971626noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-27008485592588443972011-11-13T20:21:24.570+00:002011-11-13T20:21:24.570+00:00Bloody hell Carole, you are one heck of a courageo...Bloody hell Carole, you are one heck of a courageous woman!! I read your post with amazement, you sound so strong and determined, even in the face of such pain and not such great news!! <br />I'll be thinking of you every day next week and hoping that the treatment does all that it can!!<br />Take Care lovely lady!!<br />(((Hugs)))<br />Chezzy xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-70250653175902759122011-11-13T16:50:04.235+00:002011-11-13T16:50:04.235+00:00Carole,
Sounds like a good plan...don't like ...Carole,<br /><br />Sounds like a good plan...don't like the cost question of cyberknife even if it does sound logical that the funding team will require radiotherapy to be tried first...with avastin there was a big question of cost and was noted at one of my regular oncologist meetings on a Thursday. Our next meeting 3 weeks later she said funding had been approved and we would be starting within the week. I suppose it was easier and quicker as there were no cheaper options available for them to try on me first. Again they look like they have a good plan of action and I guess you are looking forward to that pain disappearing for a while at least.<br /><br />Chin up me old china.<br /><br />Tony xxxTony Songhursthttps://www.blogger.com/profile/11727438178278659080noreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-33630746766635384392011-11-13T15:40:50.738+00:002011-11-13T15:40:50.738+00:00I shall be thinking of you extra hard all this wee...I shall be thinking of you extra hard all this week, Carole. xxxxKatherinenoreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-79551075305561920472011-11-13T15:05:01.067+00:002011-11-13T15:05:01.067+00:00Two years? Gulp.
Hugs ((0))Two years? Gulp. <br />Hugs ((0))Fionanoreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-7157226102723852602011-11-13T15:02:52.306+00:002011-11-13T15:02:52.306+00:00Oh Carole
Where do you get your incredible strengt...Oh Carole<br />Where do you get your incredible strength from?<br />I so hope you get some relief from pain very soon.<br />With warmest wishes<br />Mimi<br />XxxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2044339197163784788.post-88011251412749888852011-11-13T09:42:17.389+00:002011-11-13T09:42:17.389+00:00All hands to the pump...
Sounds like such a flurr...All hands to the pump...<br /><br />Sounds like such a flurry and whirlwind of activity after so much time spent wondering, waiting, worrying, and in pain.<br /><br />So, Monday then. Day one for radiotherapy - and the first day on the road to a pain free existence - or at least, manageable pain. I'll drink to that.<br /><br />I glanced over the 'buying time' paragraph with 'la la la' in my head...can't quite get my head around that one.<br /><br />Think about you every day, and sending you lots of love and hugs,<br /><br />xxxxxxxxshentshttps://www.blogger.com/profile/00320300863521778944noreply@blogger.com