- they had cancelled the previous day,
- therefore my fortisip drinks (that were the previous week apparently so essential) to aid my recovery had not been taken,
- the pre-op drinks had also not been started (again 'essential to aid recovery'),
- the bowel prep should have been started by breakfast time and it was now late afternoon,
- my son had been informed the operation was not taking place now this week,
- and I have a lingering cold, blocked sinus' and headache and Sister had said I would be refused admission
- I'm Carole, living in London, happily married and mum to two amazing boys.I was diagnosed with Stage 3 Rectal Cancer in April 2010. Surgery took place in November 2010 and I now have a permanent colostomy...Spinal mets were then diagnosed in October 2011...In January 2012 I was told of further spread to the hip area (multiple lesions)..My life expectancy is now 6-9 months. Walk alongside me on the last part of my experience with this..
Tuesday, 5 October 2010
What happened next then....?
Okay, as you all now know, after successfully mentally getting myself into the 'right' place (at last) they then contacted me early Sunday afternoon and said 'Sorry, no bed so your op cannot take place this week'.
I also discussed the fact that I still had a cold with Sister J who telephoned and she said if I'd arrived there with a cold they would have sent me home without any hesitation for two reasons - my own safety during major surgery and afterwards (risk of chest infection/pneumonia) - also the safety of other patients on the ward who have seriously reduced immune function following their own surgery.
Monday morning Rab and I go off to do some things and we are out of the house from about 10am until approximately 2.30pm. By the time we get home there are 3 missed messages on the landline and a further 3 on my mobile (which I'd left at home on charge)
1st message - Hi Carole, could you give admissions a ring please. Many thanks'
2nd message - Carole, can you contact me about your admission please, this is quite urgent
3rd message - I need to speak to you now about your admission. You must now contact me immediately'
Similar messages left on the mobile....
So at 3pm I rang and said 'What's the problem and the urgency?'....
Answer 'Hello Carole, the surgeon wants you to come in now, as in, right now'....
I said that wasn't even a possibility as:
'Well, Mr S wants you to come in right now for your operation tomorrow morning, he's not at all happy that we cancelled your bed and he wants you here. He will over-rule the Sister if necessary'...
(hmmm, not happy about that considering that Sister J was considering my safety and that of others - this now feels like a 'convenience exercise' e.g: you need to be here because his time is booked and your safety comes second to that)
My answer 'That's a shame, someone should have ensured that my bed wasn't cancelled then as right now I've moved into 'next time' mode and like I said I have a cold and nothing has been done that needed to have been done to ensure my welfare'
I felt so bloody stressed because firstly I'd got myself prepared then was told not possible this week and now being told 'back on again' as though it was for a minor op involving a 'local' not major 8 hr surgery involving a 'general'
They had me there at the hospital for my pre-op assessment two weeks before and as you know, it took from 10am to 3pm and left me completely overwhelmed with reading information and health information that was to be adhered to, so that my recovery could be as smooth and easy as was possible.
During this it was stressed to me over and over again that all the pre-op stuff was absolutely so essential to ensure complete recovery as quickly as possible - now suddenly it's all changed to 'None of that matters, just get yourself in here now' ....
So, I'm still here at home, and I'm now waiting for a new surgery date after I've shifted my cold and been given enough time to do the essential pre-op preparations.
The lady in admissions wasn't 'able' to give me a new date apparently - so I said 'That's fine, ring me when you sort it all out then'...
Trying to stay calm and in control of things only works when everyone works WITH you to ensure that happens.