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I'm Carole, living in London, happily married and mum to two amazing boys.I was diagnosed with Stage 3 Rectal Cancer in April 2010. Surgery took place in November 2010 and I now have a permanent colostomy...Spinal mets were then diagnosed in October 2011...In January 2012 I was told of further spread to the hip area (multiple lesions)..My life expectancy is now 6-9 months. Walk alongside me on the last part of my experience with this..

Friday, 30 September 2011

Recent Scan results...

No, not the BONE scan because people still have to discuss this!  These are my CT results from the 19th of this month.


"the CT scan showed very little change but commented that the area on the lung we're following may be slightly more prominant. We asked our collegues in the lung team to review for us and they have suggested we repeat the CT scan in 3/12 as these changes are so slight and not conclusive"


So no real news, still 'inconclusive' and I'll be rescanned on 19th December. I still live in Limboland :)


I have replied to the email and asked if a PET scan would now be an appropriate next step....They did offer me an appointment with their lung team but as they've already said it's 'inconclusive' there doesn't seem much point in going down that route just now.
I've also asked about my outpatients appointment being put back to the 28th November and stressed that I am not at all happy about this. It appears that my colorectal nurse was not aware of the change in my appointment as she mentioned the original October date and the 'possibility' this may have to be altered. Seems I'm ahead of them with appointment news then!  


Apart from that news, I had a repeat Osteopathy appointment on Wednesday. Since then I've not been comfortable at all. So that was short lived relief - lol. 
My Osteopath is now sure that the problem is NOT muscle related, it's the bones in the rib area that are causing pain - so it could be Radiotherapy damage? 
I'm seeing my GP on the 4th and will again ask about the bone scan. I've also asked my colorectal team to advise my GP accordingly (as he feels he needs their 'go-ahead' before he books me in for one). 


Weather here is lovely and if I felt better I'd be doing some gardening - however as I have limited movement it seems futile to even try, so instead I'll just try to get some sun on my achy bones whilst it lasts. 


Have a nice weekend everyone and if you're lucky enough to be in a sunny place, enjoy the last of the summer sunshine.


Catch up soon xx
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9 comments:

  1. Sarahmumof330 September 2011 at 09:16

    oh Carole, sorry your still in limbo land with all this.. hope the sun warms your bones a little whilst it is here, much love xxxx

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  2. shents30 September 2011 at 09:21

    Hmmm - all very frustrating - back in that awful limboland place again, and having to make a nuisance of yourself in order to get everyone working for you...
    Glad you're getting some sunshine. It is incredibly beautiful up here but very strange! Autumn colours everywhere but blazing summer sunshine. Bonkers, but lovely :-)))
    Much love xxx

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  3. Carol30 September 2011 at 09:23

    Hi Carole, this is a real mixed bag!
    Yay! (I think), and Boo! ????
    Yep.....Limbo land!
    I can really relate to the pain, not knowing 'why' is a real bummer.
    Really sunny and bright here, and I am enjoying it.
    Hope that you do the same.
    Hugs
    Carol

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  4. Carole30 September 2011 at 09:54

    Thanks Sarah - can't be moping around when the sun is *this* bright and warm at the end of September. At least the weather is great eh :)

    Carol - yes, mixed bag. Not the best news and definitely not the worst either. Still somewhere in the middle ground - which buys me a lot more time if nothing else eh :)

    Shents,
    I feel I've never moved out of Limboland since my initial diagnosis back in April 2010 - so I'm thinking I'm comfortable here now. Moving out could be dodgy so I'll stay here for the time being :)

    The autumn changes with the summer sunshine are amazing - everything looks confused right now but some of my flowers didn't come out in time for the summer months and over the past few days they've all started to emerge. So, looking out of my window I've got the beginnings of summer flowers going into October - brilliant :) (I've still got no bloody tomatoes or courgettes though - lol)
    xxxx

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  5. ALIAS30 September 2011 at 13:06

    Hi aunty,

    With your continuous status in 'limboland', I am glad you have gone the route of enjoying what is available right now. A little bit of good weather, followed by being surrounded by people who love you, hopefully does something to take your mind off what we are yet to know.

    xx

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  6. Carole30 September 2011 at 14:33

    Hi Lamia,
    I'm keeping myself busy with things instead of dwelling on the 'what if's' that this keeps chucking in my direction.

    Sunshine always helps lift the mood and somehow does make everything just a bit easier :)
    Hugs xxxx

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  7. Carol30 September 2011 at 21:05

    You little monkey....getting me all excited about your news, will check again tomorrow! Hugs
    Carol

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  8. Carole30 September 2011 at 21:24

    LOL Carol,

    It'll give you something to read at 4am when you can't sleep xx

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  9. Carol1 October 2011 at 10:19

    Read it....great news!

    ReplyDelete

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