- I'm Carole, living in London, happily married and mum to two amazing boys.I was diagnosed with Stage 3 Rectal Cancer in April 2010. Surgery took place in November 2010 and I now have a permanent colostomy...Spinal mets were then diagnosed in October 2011...In January 2012 I was told of further spread to the hip area (multiple lesions)..My life expectancy is now 6-9 months. Walk alongside me on the last part of my experience with this..
Tuesday, 10 May 2011
Back at work.......
I've been back at work now since 26th April. I'm doing a phased return - at the moment just 4 hours a day 3 days a week and although I thought I'd be able to 'up' my hours quite quickly, I realised after the first 2 weeks that I need to pace myself.
I was going to try to increase my hours this week to 5 hours per day but after a meeting with my Office manager she convinced me to stick to the 4 hrs for now - and to be honest she's right. I'm feeling uncomfortable sitting upright for long periods, I'm way more tired than I thought I'd be after working just a few hours - but at least I'm back in the land of 'normal' once again.
Today we discussed getting me a cushion or back rest to support my lower back whilst sitting. I'm going to look into this tomorrow as this dull ache is really draining. The achy pain is in the original tumour site - it could well be scar tissue, it could also be because the bloody wound still hasn't healed or it could be something more sinister.
Right now I don't have the answers - so I'll get a cushion support organised and see how it goes.
Not long now until my 'chat' with the colorectal nurses when I have my check up in June.
I've been trying to find out what the 'standard' post op care plan is for colorectal cancer. What I've discovered is that there is no 'standard' post op care plan - it varies from region to region.
The charity 'Beating Bowel Cancer' gave me some advice about probable reasons for not scanning me for 12 to 18 months after surgery....... Basically it's because they don't want to subject me to further Radiation haha bloody ha....
I kinda think that the original treatment - that burned me so badly - would have already caused any future problems and it's unlikely that a scan is now going to do more damage than what has already been done.
Today I found out that a cyber friend who had the same op as me in December (a month after my op) has already had a check up scan. Mine is another 6 months away as things stand at the moment.
I can't feel 'clear' of this until I've got some proof. So although I'm moving on by returning to work, I'm not really moving on at all - if you understand what I mean.
Heyho...the fight goes on........
PS. If you've had colorectal cancer I'm really interested in hearing about your post op care. How long after surgery was your first / second scans etc and any other info.