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I'm Carole, living in London, happily married and mum to two amazing boys.I was diagnosed with Stage 3 Rectal Cancer in April 2010. Surgery took place in November 2010 and I now have a permanent colostomy...Spinal mets were then diagnosed in October 2011...In January 2012 I was told of further spread to the hip area (multiple lesions)..My life expectancy is now 6-9 months. Walk alongside me on the last part of my experience with this..

Thursday 7 October 2010

I have heard......

nothing as yet.....

No calls from the admissions department to advise me of ANY new date yet.

My pen marks on my tummy are wearing off now - the shiny protective sticky plaster is long gone and I've now resorted to colouring myself in each day :-))

I'll ring them tomorrow and see if they're aware of any update to my surgery plan.

I did receive a really lovely, totally unique gift this evening which deserves it's own post. Much more news on that tomorrow, maybe even a video if I can do one that shows this off to it's full effect
(No-one tell Loretta - make her wait...LOL) :-)))

UPDATE: Friday 8th Oct

I contacted the admissions department and asked if there was any date for my Op. I spoke to a different lady - the usual one, P, was apparently out of the office for lunch for another half an hour.

So after giving her my hospital ID number she looks me up and says:

Her: Oh yes, I've found you - it says here that you cancelled your operation because you felt a bit unwell

Me: No, the hospital cancelled my operation because there was no bed for me AND it worked out okay because I had developed a cold and the Sister said I wouldn't be admitted

Her: Yes, but we did tell you that your operation was back on again the following day

Me: Yes, and I still had the cold plus hadn't had time to prepare properly

Her: Oh dear. There's no new date here so we'll have to ring you when we know something

Me: Any idea when that might be?

Her: No sorry, no idea at all. We'll ring you when we know something.

So that's that then I guess. Sigh.....I have no idea how I'm supposed to remain positive about all of this whilst feeling totally in limbo now.

3 comments:

  1. The surgeon must be sulking after being put in his place! Good idea to give them a little call. I'm sure they'll be expecting to hear from you!
    Can't wait to find out about the unique gift!
    Has the cold gone yet?
    Shents xxx

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  2. LOL about the surgeon comment Shents because Rab's just said something very similar.

    Cold's pretty much completely cleared up now, thanks.

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  3. Sounds horribly familiar! It amazes me how some of us are still alive despite the repeated omissions to follow up on things we are told will happen. If we don't follow them up, they sometimes won't happen. The only thing that helps marginally is that, as tiresome as it is chasing everyone - I do it for myself. I'm ultimately responsible for my life so if that means a few more phone calls because I'm not (and certainly don't expect to be) the top of everyone else's list then fair enough. (After I've cried and whined for an hour or so anyway).

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