About Me

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I'm Carole, living in London, happily married and mum to two amazing boys.I was diagnosed with Stage 3 Rectal Cancer in April 2010. Surgery took place in November 2010 and I now have a permanent colostomy...Spinal mets were then diagnosed in October 2011...In January 2012 I was told of further spread to the hip area (multiple lesions)..My life expectancy is now 6-9 months. Walk alongside me on the last part of my experience with this..

Wednesday, 14 July 2010


Well it's now a week since I met with Dr L and he agreed no more Radiotherapy treatment due to the burns.

One week on I can now say that there is a great improvement, the external skin is healing and I've not taken any oral morphine since Sunday now.
Any internal burns are going to take a bit longer yet I think, still feels quite sore BUT definitely not unbearably sore like before.
I do think that possibly some damage been caused to my bladder - hopefully it's only temporary - as I have noticed that I'm having to get up regularly during the night (between 1.5 to 2 hrs maximum) to go to the loo...I'm hoping that it's a temporary problem, again due to the Radiotherapy and not permanent damage.
I'm still using the morphine and Nu-gel mixture on the skin as this has definitely helped with the healing process.

I'm tired but not as much as whilst the treatment was going on....if I could get a decent nights sleep I'd probably be a lot less tired! But I've been catching up during the day with an hour here and there when I've needed to.

James and Leanne are away in Ibiza at the moment - Stuart and Jodie are getting married out there this week so hopefully they're having a great time.

Mum and Dad are coming over for dinner this afternoon as Dj finishes school early today (2pm) due to Parents Evening.

Our Parents Evening appointment is tomorrow, we've already received his school report for the year which is (of course, as usual) excellent :-))
Tomorrow we should get his 'SAT's' results (it was 'pretend' SAT's this year in that they were marked internally by the school and not sent off for government data purposes).
I think he should have done pretty well - I'm expecting high Level 4's in English and Maths with secure Level 5 in Science....let's see if I'm right.

His reading level has gone through the roof, last time he was assessed he was at Level 5a which is brilliant (those who know Dj will remember how much he struggled with the whole reading process initially and how much things have changed over the past couple of years)
He's currently reading the 'Warhammer series, Imperial Guard Omnibus' - I thought it might have been a bit difficult for him but he's got into it really quickly...:-)

I always really wanted him to love reading, I used to read loads as a child/teenager and wanted him to have the chance to appreciate books - and he does, so much so that I'm now constantly nagging him at night that it's late and he needs to stop reading (how things change eh) :-)

So, to sum up....I'm coping OK at the moment, sorting things out for the end of term and beginning of the new term in the new school - life is pretty much as it should be and just waiting for the next stages now (scans on the 10th - meeting with surgeon on 25th).


  1. Really pleased to read your post, was missing the update. Also pleased you feel a little better and you sound so positive. Love hearing the updates on what's going on at home as I miss all you guys so much. I'll have a look round to see if I can find a book on the wars in Greece for DJ as that will be an interesting read for sure as it involves so many countries. Found out today that the "old town" here was established 17 century's ago! Hope J & L having great time too as it will help them de-stress a little. Enjoy dinner with ma & pa, catch up later hun, love you lots, lit sis xxx

  2. Hurrah!! Soooo glad you're feeling so much better now they've stopped blasting you with burny, zappy things.

    Well done to DJ for the excellent report, too.

    Love you xxxxx

  3. Thanks Lou,
    Hopefully next time we meet up for lunch I might even be slightly better company :-)
    Luv & hugs to you too xxx

  4. Yes book about wars sounds great for him Sis.

    He's quite disappointed about not being able to make Rhodes this summer now but he's looking forward to when we can come over.

    J and L had a disaster over in Ibiza, their villa has been robbed whilst they were all out in the town - so I'm hoping that's not messed up the wedding plans too much.
    He says they're both ok but been lots of hassle sorting out replacement passports and other things.
    Not what you really need on your hols eh :-(

  5. No way! So much for the de-stress! Really feel for them, just hope the wedding goes well so they have happy memories.

    Yes, well done DJ for excellent report. Sounds like he follows in J's foot steps, I loved reading those reports all those years ago! Remember sis, you and Eddie used to hide your reports so mum and dad didn't get to read them! haha! My report always said "Sarah is a distraction to the class and could do better" hehe! xxx

  6. Yeah, so much for a stress free time eh :-( Eventually this year something will go right for all of us....

    Re MY school reports: most famous comment on mine was 'I would like to be able to say Carole has progressed and made improvements this year, unfortunately I have NO idea who she is!'....

    LOL, I still remember Dad's purple face on reading that one :-0)

  7. Carole,

    Nice one, glad something is finally working for you me darlin!

    Much Love

    T xx

  8. Thanks Tony, onwards and upwards, bit like those Matlock hills you'll be tackling shortly :-)

    Great to read such a positive post on your blog too...things are really going forward nicely for you now and about time too xxxx

  9. It's all 'me, me, me' with you these days, woman! FFS! What about parents' evening and DJ's 'SATS' results???

    (And yes, I'm STILL sulking about the Sharps box)


  10. LOL! My social studies teacher said to me, "if you don't come to this class, I won't tell anyone if you don't!" Funny thing was, I used to go and visit mum in the cafe where she worked for that afternoon, I think she had given up forcing me to go to school! But come on sis, our school was on the TV and with threats to close as it was so bad! Thank goodness a new head teacher came in to change things.

    See you next week! lit sis xxx

  11. Yes, yes, yes. Enough about you now! What about parents' evening and DJ's (fake) SATs results?????